tag:blogger.com,1999:blog-3458993853337115554.comments2023-08-03T10:35:33.906-04:00Security, beer, theater and biking!Valerie Fenwickhttp://www.blogger.com/profile/08527896668172818126noreply@blogger.comBlogger185125tag:blogger.com,1999:blog-3458993853337115554.post-51684597489183547722019-07-31T17:17:02.079-04:002019-07-31T17:17:02.079-04:00I've been Googling all over the place to find ...I've been Googling all over the place to find the difference between /dev/sgx and /dev/isgx. The former uses the centralized Intel attestation service with EPID. The later allows you to have your own attestation service using a DCAP protocol. The connection between /dev/[i]sgx and EPID/DCAP is poorly documented for some reason.Danhttps://www.blogger.com/profile/17293532721917678181noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-52204401002612574202019-02-27T12:45:39.747-05:002019-02-27T12:45:39.747-05:00Lots of good tips - thank you.Lots of good tips - thank you.Valerie Fenwickhttps://www.blogger.com/profile/15799797222606030898noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-88022902412349800372019-02-27T12:44:14.499-05:002019-02-27T12:44:14.499-05:00I am so sorry to hear about your progression! I ho...I am so sorry to hear about your progression! I hope that it calms down. My doctors always say that i need to be relaxed to help calm the flare - hard to do when vision is so impacted! But, still, I wish you calm. hugs!Valerie Fenwickhttps://www.blogger.com/profile/15799797222606030898noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-18266875137277386412019-02-27T04:12:57.235-05:002019-02-27T04:12:57.235-05:00Hi, I do not know if this post is still active and...Hi, I do not know if this post is still active and I hope everyone that posted here is well!!<br /><br />I was diagnosed with PIC 9 months ago (at the age of 32). Eventually I developed CNV and am doing injections of Eylea every month. Did a 4 month course of oral prednisolone. 3 weeks ago i finished the course and an in about 2 weeks had a flare. Tomorrow I am going to the doctor and will see what options he will give me. It is crazy scary!!! Just thinking about what might happen! But I hope there are advances nowdays! there are so many people who recover or manage the disease. can you please share your treatments?Anonymoushttps://www.blogger.com/profile/07584901752266064150noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-55501867219072401892013-04-15T15:28:33.661-04:002013-04-15T15:28:33.661-04:00Just removed typos above
I was diagnosed with PIC...Just removed typos above <br />I was diagnosed with PIC 20 years ago where there was virtually no treatment except prednisone<br />I have it in both eyes and I am a survivor<br />Today there is fortunately more treatments Find the right retinal doctor There a few top ones in the USA who can point you in the right direction <br />It must be one who really read an angiogram and OCT results Otherwise when you see something they may not <br />Yanuzzi in New York Id recommend but he may have retired by now Try Andrew Chnangs Office in Sydney Australia 612 9221 3755 <br />They will be able to give you a names for here you live Speak to his registrar<br />Get an Amsler Grid Check your eyes every day ONE AT A TIME Keep it on your fridge Be vigilant <br />Keep Prednisone on you at all times If you have an episode start at least 100mg and then under medical supervision cut down <br />You are your best advocate because you will detect change first before you specialist does<br />Following an episode start high dose prednisone straight away them present to you tertiary retinal doctor who will after a while cut you down <br />Keep your tress levels down If you get an episode you must cool it <br />Change your diet All of the research for AMD applies for this condition shows its a factor<br />No trans fatty acids Lower you cholesoterol<br />Take an eye antioxidant similar to the AREDS study in the USA<br />No heavy lifting Exercise or walk allot keep bone densities up<br />Novartis has some good drugs it uses for wet AMD These also can be used for PICS as a last resort with good results <br />Find a retinal doctor who knows their stuff <br />If they are not decisive they are not the one <br />Fortunately things are allot better 20 years on <br />When I first went through this patients ended up medically retired <br />TODAY Permanent vision loss with this condition does not have to be inevitable <br />Sydney AustraliaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-62057071360494015732013-04-12T19:10:11.712-04:002013-04-12T19:10:11.712-04:00In addition to oral prednisone, I also received a ...In addition to oral prednisone, I also received a steroid injection in my eye region which worked wonders for restoring vision for me. Same drug, just localized, was my understanding.Valerie Fenwickhttps://www.blogger.com/profile/15799797222606030898noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-47345669448669234322013-04-12T18:33:39.460-04:002013-04-12T18:33:39.460-04:00DAVE AS A 20 YEAR BILATERAL SURVIVOR I AM HAPPY TO...DAVE AS A 20 YEAR BILATERAL SURVIVOR I AM HAPPY TO HELP YOUR SITE WITH ADVICE<br />I ALSO HAVE SOME SUGGESTIONS FOR YOU <br /><br />SYDNEY AUSTRALIAAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-43840787510677566372013-04-12T18:31:52.745-04:002013-04-12T18:31:52.745-04:00LOUISA NOT SURE WHERE YOU ARE FROM I HAVE WRITTEN ...LOUISA NOT SURE WHERE YOU ARE FROM I HAVE WRITTEN A NUMBER OF RESPONSES ON THIS PAGE<br />YOU ARE NOT WITH THE RIGHT TERTIARY RETINAL DOCTOR YOU NEED TO SEND YOUR ANGIOGRAMS AROUND UNTIL YOU FIND THE RIGHT PERSON <br />IF YOU GET ANY SUDDEN DISTORTION DIFFICULTY READING ETC YOU NEED TO START TREATMENT STRAIGHT AWAY <br />LOOK AT AN AMSLER GRID EVERY DAY (ONE EYE AT A TIME) SO YOU CAN PICK IT UP QUICKLY <br />SYDNEY AUSTRALIA Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-87437489372339727262013-04-12T18:26:40.361-04:002013-04-12T18:26:40.361-04:00AS a PICS SURVIVOR OF 20 YEARS I URGE YOU TO GET A...AS a PICS SURVIVOR OF 20 YEARS I URGE YOU TO GET A SECOND OPNION DROPS ARE NOT ENOUGH TO FIGHT THIS <br />ORAL PREDNISONE IS THE ONLY CURRENT ADVOCATED TREATMENT AMONGST TERTIARY RETINAL DOCTORS AND AS A LAST RESORT THEN ITS THE NOVARTIS OWNED DRUGS FOR THE WET FORM OF AMD <br />YOU NEED A TERTIARY RETINAL DOCTOR WHO REALLY CAN CONTROL WITH THIS, READ ANGIOGRAMS OCT AND KNOWS EXACTLY WHEN AND WHAT HE HAS TO ADMINISTER <br />YOU CAN DEFINITELY GET A BETTER OUTCOME THAN WHAT YOU HAVE DESCRIBED <br />DONT BE SCARED YOU CAN DO IT <br />NOT SURE WHERE YOU ARE FROM TO HELP YOU ANYMORE WITH NAMES Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-9201290808413882522013-04-12T18:20:14.511-04:002013-04-12T18:20:14.511-04:00ITS A LONG JOURNEY BUT YOU WILL GET THERE
BE VIGI...ITS A LONG JOURNEY BUT YOU WILL GET THERE <br />BE VIGILANT WATCH YOUR DIET USE AN AMSLER GRID DAILY MAKE SURE YOU HAVE THE RIGHT RETINAL DOCTOR<br />WHEN YOU GET AN EPISODE TAKE PREDNISONE STRAIGHT AWAY TO STABILISE & THEN PRESENT TO YOUR RETINAL DOCTOR STRAIGHT AWAY <br />TAKE AN ANTIOXIDANT SIMILAR TO THE US AREDS STUDY EAT LEAY GREEN VEGETABLES FISH <br />NO TRANS FATTY ACIDS CANT EMPHASISE THIS ENOUGH <br />I GOT IT ON MY SEOND EYE WITHIN SIX MONTHS <br />REDUCE YOUR STRESS LEVELS ITS A DEFINITE CATALYST FOR THIS AUTOIMMUNE CONDITION <br />GET SHOTS ON TIME AND PRESENT IN A VIGILANT MANNER <br />YOU CAN REALLY FIGHT THIS DISEASE AND MAKE IT <br />WE ARE ALL BEHIND YOU <br />GET A RETINAL DOCTOR WHO CAN DIAGNOSE YOU CORRECTLY AND READ AN ANGIOGRAM AND OCT TO MONITOR ACTIVITY AND TREATMENT COURSE<br />CORRECTLY <br />IF HE TOLD YOU HISTOPLASMOSIS HE DOES NOT KNOW THIS DISEASE ENOUGH TO HELP YOU NOT SURE WHERE YOU ARE FROM TO MAKE SUGGESTIONS<br />I WAS DIAGNOSED WITH HISTOPLASMOSIS BUT TWO WEEKS LATER I FOUND THE RIGHT GUY THAT WAS AFTER GING THROUGH NUMEROUS SO CALLED HIGH PROFILE RETINAL DOCTORS<br />SYDNEY AUSTRALIA<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-91111578844108963342013-04-12T16:11:07.642-04:002013-04-12T16:11:07.642-04:00This comment has been removed by a blog administrator.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-71350603381438299532013-04-10T16:10:36.311-04:002013-04-10T16:10:36.311-04:00Angie -
I'm sorry to hear that your PIC has ...Angie -<br /><br />I'm sorry to hear that your PIC has started up in your good eye. I hope with early detection and treatment that this will be a minor flare up. I did well with a steroid injection to the eye region. good luck!<br /><br />ValerieValerie Fenwickhttps://www.blogger.com/profile/15799797222606030898noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-33991797583948448272013-04-09T22:52:07.219-04:002013-04-09T22:52:07.219-04:00I have seen doctors for 15 years, every six months...I have seen doctors for 15 years, every six months so my presumed histoplasmosis did not return. In 2011 I found a histoplasmosis expert in my area and he said it was diagnosed wrong and called it PIC. I have almost no vision in my right eye, only some peripheral. Last week I noticed my left eye was changing, spots, and what I believe is called photosia? the darkness that feels like you stared at the sun. Yesterday my doctor reviewed images and examined me, put his hand on my arm and told me it was active in my left eye. He started me on prednisone and I may suggest the shots so many have indicated as helpful. I am comforted that so many have responded well to treatment and hope that I will get to report back the same. Thank you for this forum. Angiehttps://www.blogger.com/profile/07746785849833686663noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-49001759566717226892013-01-29T10:07:00.765-05:002013-01-29T10:07:00.765-05:00Thank you Valerie your words have comforted me. I...Thank you Valerie your words have comforted me. I appreciate you reaching out. I will keep you posted.<br /><br />KAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-82853833594480607772013-01-28T13:18:59.067-05:002013-01-28T13:18:59.067-05:00K - I had never heard about PIC before, and it too...K - I had never heard about PIC before, and it took a long time to get a diagnosis. Going through all of those tests, with my vision getting worse every day with no diagnosis/prognosis was terrifying. It took a long time, but I was fortunate and the swelling on the lesions went down and my night vision and most of my vision returned. I know it's not always that way for everyone. I can only hope that I never have another flare up! Good luck!Valerie Fenwickhttps://www.blogger.com/profile/15799797222606030898noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-75343538281374681512013-01-28T10:29:23.101-05:002013-01-28T10:29:23.101-05:00Thank you Valerie! It puts things into perspectiv...Thank you Valerie! It puts things into perspective for you. Our vision is something I took for granted. Now I see how precious it is. My doctor has me on a steroid eye drops. So I am hoping for the best. This site is great its good to know that there is support out there. Thank you so much and I will keep you posted.<br /><br />KAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-83051043596969285612013-01-27T19:41:00.747-05:002013-01-27T19:41:00.747-05:00K - I hope you recover quickly. I got almost all o...K - I hope you recover quickly. I got almost all of my vision back and so have many others. take care!Valerie Fenwickhttps://www.blogger.com/profile/15799797222606030898noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-24349346360893981632013-01-27T00:54:33.579-05:002013-01-27T00:54:33.579-05:00I was diagnosed with pic today. I am terrified bu...I was diagnosed with pic today. I am terrified but I have to be strong for my family. KAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-31570917520091193222013-01-22T17:24:52.349-05:002013-01-22T17:24:52.349-05:00Wonderful write up! Thanks, Valerie.
Patty
Wonderful write up! Thanks, Valerie.<br />Patty<br />Patty Azzarellohttp://www.azzarellogroup.comnoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-4208199866845884162013-01-09T23:38:35.637-05:002013-01-09T23:38:35.637-05:00I really like the idea of a filter for emails addr...I really like the idea of a filter for emails addressed *to me*! that would actually be useful for catching those weird subject messages, though I worry about missing things in context (as there's often a mail thread to a bigger group and then someone will send just me a question or thought that I should know before responding to bigger thread). Thanks!Valerie Fenwickhttps://www.blogger.com/profile/15799797222606030898noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-27286856060496267682013-01-09T23:31:35.290-05:002013-01-09T23:31:35.290-05:00I filter everything not directly addressed to me i...I filter everything not directly addressed to me into separate folders (1728 total, 1157 of which get directly filtered to) and I am ruthless about keeping my inbox to a minimum (current count: 2) no matter what it takes. The biggest key is learning which folders I need to read vs which I can skim. I've never been a manager, but I will hazard a guess that delegating more will be part of your solution. :-)Anonymoushttps://www.blogger.com/profile/05578278339533594648noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-59386820485594588582012-11-19T12:27:31.036-05:002012-11-19T12:27:31.036-05:00Hi Valerie... I just loved this keynote!
Well, ab...Hi Valerie... I just loved this keynote!<br /><br />Well, about the book you suggested (Leadership Presence). Is it good?Angélica Mascarohttps://www.blogger.com/profile/11169961138699751629noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-89894054323162998002012-11-18T14:03:56.226-05:002012-11-18T14:03:56.226-05:00We used to do hiking and cycling around the Santa ...We used to do hiking and cycling around the <a href="http://www.SantaClaraTrails.com/" rel="nofollow">Santa Clara Trails</a>, I think around 3-4 times a week. It's fun and enjoyable, everything can be possible.Katenoreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-58928857445852949172012-11-08T14:26:01.940-05:002012-11-08T14:26:01.940-05:00You know, I had some vertigo around the same time,...You know, I had some vertigo around the same time, too (but the vertigo came first). this is a frustrating diagnosis, because we all feel so out of control about what we can do to prevent future flare ups and save our vision. here's to hoping you've seen your last flare up!Valerie Fenwickhttps://www.blogger.com/profile/15799797222606030898noreply@blogger.comtag:blogger.com,1999:blog-3458993853337115554.post-533011940056479962012-11-08T04:58:53.500-05:002012-11-08T04:58:53.500-05:00I'm 24, female and very short sighted, and I&#...I'm 24, female and very short sighted, and I've been diagnosed with this. All the optometrist could say to my questions was 'I don't know' (thankfully there was a visiting doctor in the room who apologised for his rudeness and explained a bit more!). I don't have blurry vision, but I get greenish spots (like after you've looked at a bright light) that last for around a week, and the latest one has distorted the vision around it. Thankfully at the moment they are small and don't seem to be doing much. All the hospital can do is monitor it, and I've not been given any treatment. <br /><br />I've got it in my right eye too, and I know exactly what you mean about doctors not knowing what's going on! That's the part i hate the most - not knowing what could happen. I'm terrified of losing my sight but we shall have to see how it goes! Weirdly, I seem to be getting dizzy spells with this. It's flared up twice, and both times I've also had the dizzyness. The ENT doctor says the dizzyness is due to a blocked inner ear, and the two are unrelated, but it's strange that they both come together. Louisanoreply@blogger.com